I have been having problems with both eyes for about 4 years now. I was told I had Thygeson's Disease. It is something that comes and goes but does not affect vision, it would just be an annoyance. Over the past 4 years I have noticed I have had some overall vision loss in my left eye, not much but some. Today I went to the eye doctor to get a new contact prescription and he kept asking me, where I grew up, have I ever been around chickens or bats? Then he looked at the scan of my eye and started again asking if I have been around chickens or bats. My scan showed a good amount of damage to the Ocular nerve. He said I have Ocular Histoplasmosis and over time I will go blind in my left eye and possibly my right eye too. This has been missed for 4 years and by other doctors. I am just happy he took the time to really look at my eye and find an answer for what is happening. Right now my right eye is still healthy but there is no telling when it too will be affected, it could be tomorrow, 20 years from now or never. I have to go see a specialist to see about treatment. The treatment will not restore vision loss but might keep it from getting worse. I will not know until I see the specialist. He also wants me to see the specialist for a second opinion to make sure that is what it is.
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bad news from the eye doctor
- Thread starter staylor
- Start date
oh my gosh.
I'm so sorry. I can imagine how frightening that thought would be.
At least you have a doctor that recommends you see a specialist, and get his opinion as well. At least you know you're not resting on one person's word.
My thoughts are with you....
btw......what type of treatment do they do for this?
I'm so sorry. I can imagine how frightening that thought would be.
At least you have a doctor that recommends you see a specialist, and get his opinion as well. At least you know you're not resting on one person's word.
My thoughts are with you....
btw......what type of treatment do they do for this?
- Messages
- 269
Oh goodness, I hope the specialist can stop the progression. Sounds like your eye doctor is a good one. Not many eye doctors sends people to specialists for second opinions. Wishing you all the luck in the world.
it is a laser surgery but the surgery itself can damage the vision more. Right now it is not too bad. I can't see much in my peripheral vision in my left eye, and reading can sometimes be hard b/c everything just blurs together.
Goodness, Sandra. As everyone said, I am so sorry you received this news. How unsettling it must be. You will definitely be in my thoughts. I'll keep my fingers crossed that the specialist has great news for you.
As Gina asked, what treatment do they do for this? And am I assuming there is not a cure?
As Gina asked, what treatment do they do for this? And am I assuming there is not a cure?
Renee, it is a laser surgery that does damage the vision more but can stop it from progressing to total vision loss.
I will let all of you know when I talk to the specialist and know more.
I did end up back at the hospital last night b/c the UTI spread to my kidneys. They gave me IV antibiotics and tons of fluids and I feel much better today. I am too young to be falling apart like this, but that is usually how it goes. I will get sick with a bunch of things at once then not have anything wrong for a year or 2. Right now I have 5 pills I am taking, an eye ointment, and eye drops. My kitchen counter looks like a drug store right now.
I will let all of you know when I talk to the specialist and know more.
I did end up back at the hospital last night b/c the UTI spread to my kidneys. They gave me IV antibiotics and tons of fluids and I feel much better today. I am too young to be falling apart like this, but that is usually how it goes. I will get sick with a bunch of things at once then not have anything wrong for a year or 2. Right now I have 5 pills I am taking, an eye ointment, and eye drops. My kitchen counter looks like a drug store right now.
I am too young to be falling apart like this, but that is usually how it goes.
I know exactly how you feel.
I was diagnosed with Bruton Syndrome or Agammagloulinemia when i was a baby. Basically I have one of the worst immune disorders you can imagine. The kind that can't be treated.
Just hang in there, and it'll get better soon. One hurdle at a time.
We were just at the pharmacy the other night picking up my meds, when I noticed the deluxe pill sorter. It the typical Mon - Sun with 3 slots per day for Morning, Afternoon and Evening. Yikes!
Seriously, we're thinking of you Sandra. Hang in there and know that this will pass. Hopefully by the time your disease gets that bad, technology will have advance such that you will have a reliable method as far as surgery or treatment. I'm finding it hard to find words to comfort. I just can't imagine how I would be dealing with something like this.
Seriously, we're thinking of you Sandra. Hang in there and know that this will pass. Hopefully by the time your disease gets that bad, technology will have advance such that you will have a reliable method as far as surgery or treatment. I'm finding it hard to find words to comfort. I just can't imagine how I would be dealing with something like this.
I hope it can be stopped. It is hard to think I could go blind and not see my kids smile again, see my grandchildren one day. If I do loose my sight then I will not be able to work as a nurse. There is so much that I will not be able to do anymore. I am just praying his was wrong with his diagnosis.
Sandra, my heart goes out to you.
Nowadays, we really need to take our healthcare into our own hands. It sounds like you are doing a lot of research and will be properly equipped when you meet with the specialist. It would be incredible if this were a misdiagnosis. But if not, I pray that you will be in good hands with the specialist you were referred to see.
Have you set the appointment?
Nowadays, we really need to take our healthcare into our own hands. It sounds like you are doing a lot of research and will be properly equipped when you meet with the specialist. It would be incredible if this were a misdiagnosis. But if not, I pray that you will be in good hands with the specialist you were referred to see.
Have you set the appointment?
I have not set the appointment yet. First I have to go to my PCP to get the referral to the specialist but have been side tracked with this kidney infection. I was at the ER for the 3rd time last night. They have adjusted my meds and ran more test. It looks as if it has spread to more areas but is starting to get better, just very slowly. My white blood cell count has decreased but is still higher then they would have liked it to be. I was also given some meds for the headaches and a different medicine for nausea. Thank God for the pain meds or this would be a lot harder to get through.
